Lorelei Christine Lovelady was diagnosed with an extremely rare genetic disease called Primary Hyperoxaluria Type 1 on February 28, 2017.

Lorelei is currently at Lurie's Childrens Hospital in Chicago under the care of Dr. Craig Langman & his team. The next step is to get her a new liver and once she hits the 10 kilo weight she'll go on the list for a new kidney as well.

The future is very much unknown at this time. One thing is inevitable though and that is medical, travel, and living expenses. The future is unknown, but today is a gift. The family is taking this one day at a time.

A benefit will be held on Saturday, August 26 from 4 PM to 9 PM at East End Boulder Club 3712 4th Ave Moline. Come out and enjoy a taco dinner and music, along with a 50/50 and silent auction.

You can also donate though GoFundMe.

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