Jeg’s Fight Against NPC
A friend of the family is going through some tough times right now. The posts on the Facebook page and Go Fund Me page explains it better than I could. But I just wanted to share this incase anyone felt the urge to help out a wonderful family.
"On October 6, 2017 on a family vacation, we were living our normal lives, blissfully unaware of the fragility of life when it all came to a screeching halt with a voicemail. We were left a voicemail telling us that our son, Jeg, had screened positive for a rare and fatal genetic disease and storage disorder called Niemann Pick Type C (NPC) (also referred to as “Childhood Alzheimer’s”). He is only 4 years old. On December 15, 2017, we received the devastating news of a confirmed diagnosis through the DNA testing. Our lives are shattered, and our worst fears have become our reality. There is also a 25% chance that our daughter, Claire, who is 7 years old could also have this disease. We are currently waiting on her results. We are now reaching out for your help and support to save our son. Without treatment and a cure, the average life expectancy is 13 years old."