Jeg Weets is a little boy from Morrison, Il with a hard road ahead of him.  He's got a rare disease that's called NPC.  It's known as Childhood Alzheimers and without treatment and a cure, the average life expectancy is 13 years old.

So, the wonderful Weets family has a bucket list they've put together.  Experiences they can do as a family and memories they can hold onto as the fight with NPC gets harder.

They took Jeggie to the Cubs game this weekend for an experience of a lifetime.  Check out the post below.

In other news, CNN filmed a show with Jeg and some other NPC families along with Jeg's doctor Dr. Elizabeth Berry-Kravis.  It is being aired on August 19th on HLN called Something is Killing Me.